“The major story we heard from victims was how compromised, sensitive information caused financial or reputation loss,” said John (Xuefeng) Jiang, lead author and MSU professor of accounting and information systems. “A criminal might file a fraudulent tax return or apply for a credit card using the social security number and birth dates leaked from a hospital data breach.”

Until now, researchers have not been able to classify the kind or amount of public health information leaked through breaches; thus, never getting an accurate picture of breadth or consequences.

The findings, published in Annals of Internal Medicine, encompass 1,461 breaches that happened between Oct. 2009 and July 2019.

Jiang and co-author Ge Bai, associate professor of accounting at Johns Hopkins Carey Business School and Bloomberg School of Public Health, discovered that 169 million people have had some form of information exposed because of hackers.

To uncover what specific information was exposed, the researchers classified data into three categories: demographic, such as names, email addresses and other personal identifiers; service or financial information, which included service date, billing amount, payment information; and medical information, such as diagnoses or treatment.

“We further classified social security and driver’s license numbers and birth dates as sensitive demographic information, and payment cards and banking accounts as sensitive financial information. Both types can be exploited for identity theft or financial fraud,” Jiang said. “Within medical information, we classified information related to substance abuse, HIV, sexually transmitted diseases, mental health and cancer as sensitive medical information because of their substantial implications for privacy.”

More than 70% of the breaches compromised sensitive demographic or financial data that could lead to identity theft or financial fraud. More than 20 breaches compromised sensitive health information, which affected 2 million people.

“Without understanding what the enemy wants, we cannot win the battle,” Bai said. “By knowing the specific information hackers are after, we can ramp up efforts to protect patient information.”

With a newfound understanding of what explicit data was leaked – and how many over the last decade were affected – the researchers offer hospitals and health providers suggestions on how to better protect patients’ sensitive information.

The researchers suggest that the Department of Health and other regulators formally collect the types of information compromised in a data breach to help the public assess the potential damages. Hospitals and other healthcare providers, Jiang said, could effectively reduce data breach risks by focusing on securing information if they have limited resources. For example, implementing separate systems to store and communicate sensitive demographic and financial information.

Jiang noted that the Department of Health and Human Services and Congress recently proposed rules that encourage more data-sharing, which increases the risks for breaches. He said that he and Bai plan to work with lawmakers and industries by providing practical guidance and advice using their academic findings.